Ran\u00e1 p\u00e9\u010de v na\u0161em \u017eivot\u011b<\/p>\n
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Na\u0161e rodina \u017eije v kraji Vyso\u010dina, m\u00e1me dv\u011b d\u011bti, star\u0161\u00edho syna Honz\u00edka, kter\u00fd je na\u0161t\u011bst\u00ed zdrav\u00fd a Ad\u00e9lku, kter\u00e1 je t\u011b\u017ece ment\u00e1ln\u011b i fyzicky posti\u017een\u00e1. Ad\u00e9lka se narodila s v\u00fdvojovou vadou mozku v kone\u010dn\u00e9m stadiu a dal\u0161\u00edmi z\u00e1va\u017en\u00fdmi vadami. Jej\u00ed zdravotn\u00ed stav nedovoluje jak\u00fdkoliv ment\u00e1ln\u00ed nebo fyzick\u00fd v\u00fdvoj. Z\u016fstane nav\u017edy jako kojenec v prvn\u00edm trimestru \u017eivota. Dnes se na jej\u00ed zdravotn\u00ed stav d\u00edv\u00e1m ji\u017e \u201cs nadhledem\u201c, ale po\u010d\u00e1tky byly pro mne a na\u0161\u00ed rodinu velmi t\u011b\u017ek\u00e9. Tak jako to b\u00fdv\u00e1 t\u00e9m\u011b\u0159 ve v\u0161ech rodin\u00e1ch, kde se narod\u00ed posti\u017een\u00e9 d\u00edt\u011b. Zvl\u00e1\u0161\u0165, kdy\u017e o tom dop\u0159edu nem\u00e1 \u010dlov\u011bk pon\u011bt\u00ed, a v\u0161e se mu stane bez varov\u00e1n\u00ed po bezprobl\u00e9mov\u00e9m t\u011bhotenstv\u00ed.<\/p>\n
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Kdy\u017e pominul prvotn\u00ed \u0161ok, za\u010dali jsme p\u0159em\u00fd\u0161let o tom, jak se bude n\u00e1\u0161 \u017eivot ub\u00edrat d\u00e1le. Volba um\u00edst\u011bn\u00ed Ad\u00e9lky do \u00fastavu pro mne byla a\u017e \u00fapln\u011b na posledn\u00edm m\u00edst\u011b. Cht\u011bla jsem se i p\u0159es n\u00e1ro\u010dnou p\u00e9\u010di o ni zkusit starat sama doma (Ad\u00e9lka byla velmi neklidn\u00e1, m\u011bla velk\u00e9 probl\u00e9my s p\u0159\u00edjmem potravy). V tomto rozhodnut\u00ed mi pomohla pr\u00e1v\u011b ran\u00e1 p\u00e9\u010de. Zam\u011bstnanci poskytuj\u00ed jak psychologick\u00e9 slu\u017eby pro rodi\u010de, tak kontakt s ostatn\u00edmi rodinami, kter\u00e9 se nach\u00e1zej\u00ed v podobn\u00e9 situaci a \u0159e\u0161\u00ed stejn\u00e9 probl\u00e9my. Poskytuj\u00ed informace, kter\u00e9 opom\u00edjej\u00ed pracovn\u00edci na soci\u00e1ln\u00edch \u00fa\u0159adech. Pro rodi\u010de je velmi t\u011b\u017ek\u00e9 zorientovat se v soci\u00e1ln\u00ed problematice, kdy\u017e mus\u00ed \u0159e\u0161it mnoho dal\u0161\u00edch v\u011bc\u00ed t\u00fdkaj\u00edc\u00edch se zdravotn\u00edho stavu sv\u00fdch d\u011bt\u00ed, n\u00e1v\u0161t\u011bvy r\u016fzn\u00fdch specialist\u016f, n\u011bkolikr\u00e1t denn\u011b doma s d\u00edt\u011btem cvi\u010dit atd. Jsou teprve na za\u010d\u00e1tku a jsou paralyzov\u00e1ni novou situac\u00ed. Nap\u0159. jsem musela \u0159e\u0161it prodlou\u017een\u00ed rodi\u010dovsk\u00e9 dovolen\u00e9 do 7 let v\u011bku Ad\u00e9lky. Tyto a dal\u0161\u00ed informace, tolik pot\u0159ebn\u00e9 pro snadn\u011bj\u0161\u00ed \u017eivot s posti\u017een\u00fdmi d\u011btmi, pom\u00e1haj\u00ed v\u0161em rodin\u00e1m, kter\u00e9 vyu\u017e\u00edvaj\u00ed slu\u017eby ran\u00e9 p\u00e9\u010de.<\/p>\n
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Ran\u00e1 p\u00e9\u010de takt\u00e9\u017e p\u016fj\u010duje hra\u010dky pro motivaci a alespo\u0148 pro \u010d\u00e1ste\u010dn\u00e9 zlep\u0161en\u00ed stavu d\u011bt\u00ed. Po\u0159\u00e1d\u00e1 r\u016fzn\u00e9 semin\u00e1\u0159e a osv\u011bty, setk\u00e1n\u00ed rodi\u010d\u016f na r\u016fzn\u00fdch informativn\u00edch kurzech, kde si mohou mezi sebou sd\u011blovat poznatky z praxe a zku\u0161enosti s v\u00fdchovou a p\u00e9\u010d\u00ed jednak sv\u00fdch nemocn\u00fdch d\u011bt\u00ed, ale i jejich zdrav\u00fdch sourozenc\u016f.<\/p>\n
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Ran\u00e1 p\u00e9\u010de je p\u0159ipravena poskytnout mi doprovod na r\u016fzn\u00e1 odborn\u00e1 vy\u0161et\u0159en\u00ed Ad\u00e9lky, kde mi pomohou v odborn\u00e9 komunikaci s l\u00e9ka\u0159i. N\u011bkte\u0159\u00ed l\u00e9ka\u0159i r\u00e1di pou\u017e\u00edvaj\u00ed pouze odborn\u00e9 term\u00edny.<\/p>\n
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Kdy\u017e Ad\u00e9lka povyrostla, pot\u0159ebovala jsem nov\u00fd ko\u010d\u00e1r, abychom spolu mohly jezdit na proch\u00e1zky a nebyly neust\u00e1le doma. Zde n\u00e1m op\u011bt ran\u00e1 p\u00e9\u010de pomohla a poskytla informace o firm\u00e1ch, kter\u00e9 se v\u00fdrobou t\u011bchto a jin\u00fdch pot\u0159ebn\u00fdch zdravotn\u00edch pom\u016fcek zab\u00fdvaj\u00ed. Pak nastoupil probl\u00e9m s p\u0159\u00edpadn\u00fdm dofinancov\u00e1n\u00edm, jeliko\u017e ko\u010d\u00e1rek nen\u00ed zrovna levn\u00e1 z\u00e1le\u017eitost. Op\u011bt tu ran\u00e9 p\u00e9\u010de, kter\u00e1 mi poskytla informace o nadac\u00edch, kter\u00e9 jsem n\u00e1sledn\u011b oslovila s \u017e\u00e1dost\u00ed o p\u0159\u00edpadn\u00e9 dofinancov\u00e1n\u00ed.<\/p>\n
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Bydl\u00edme v panelov\u00e9m dom\u011b, v byt\u011b ve 4. poschod\u00ed bez v\u00fdtahu. Zat\u00edm na\u0161e situace nevy\u017eaduje \u00fapravy, ale do budoucna s nimi mus\u00edme po\u010d\u00edtat. U\u017e nyn\u00ed tedy zva\u017eujeme variantu po\u0159\u00edzen\u00ed v\u00fdtahu nebo koupi jin\u00e9ho bytu. I v tomto p\u0159\u00edpad\u011b je pot\u0159ebn\u00e1 jak finan\u010dn\u00ed pomoc, tak praktick\u00e1 rada. I s t\u00edmto probl\u00e9mem se obrac\u00edm na moji drahou r\u00e1dkyni z ran\u00e9 p\u00e9\u010de, jako\u017eto s po\u0159izov\u00e1n\u00edm d\u016fle\u017eit\u00fdch pom\u016fcek kup\u0159\u00edkladu rehabilita\u010dn\u00ed st\u016fl, leh\u00e1tko do vany i r\u016fzn\u00e9 polohovac\u00ed pom\u016fcky. S t\u00edm v\u0161\u00edm se mohu obr\u00e1tit na ranou p\u00e9\u010di a v\u017edy mi dok\u00e1\u017e\u00ed poradit, kde se daj\u00ed sehnat, p\u0159\u00edpadn\u011b kde vyhledat finan\u010dn\u00ed pomoc.<\/p>\n
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Pro l\u00e9ka\u0159e v\u0161e \u201ckon\u010d\u00ed\u201c stanoven\u00edm diagn\u00f3zy, a pak je jen na rodi\u010d\u00edch jak se se sv\u00fdm osudem budou d\u00e1l pr\u00e1t. Proto je tu ran\u00e1 p\u00e9\u010de, aby jim podala pomocnou ruku a usnadnila jim slo\u017eit\u00fd \u017eivot, zvl\u00e1\u0161t\u011b na za\u010d\u00e1tku. Neum\u00edm si n\u00e1\u0161 \u017eivot s Ad\u00e9lkou p\u0159edstavit bez jejich pomoci.<\/p>\n
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rodina Lanka\u0161ova z Pelh\u0159imova<\/p>\n","protected":false},"excerpt":{"rendered":"
Ran\u00e1 p\u00e9\u010de v na\u0161em \u017eivot\u011b Na\u0161e rodina \u017eije v kraji Vyso\u010dina, m\u00e1me dv\u011b d\u011bti, star\u0161\u00edho syna Honz\u00edka, kter\u00fd je na\u0161t\u011bst\u00ed zdrav\u00fd a Ad\u00e9lku, kter\u00e1 je t\u011b\u017ece ment\u00e1ln\u011b i fyzicky posti\u017een\u00e1. Ad\u00e9lka se narodila s v\u00fdvojovou vadou mozku v kone\u010dn\u00e9m stadiu a dal\u0161\u00edmi z\u00e1va\u017en\u00fdmi vadami. Jej\u00ed zdravotn\u00ed stav nedovoluje jak\u00fdkoliv ment\u00e1ln\u00ed nebo fyzick\u00fd v\u00fdvoj. Z\u016fstane […]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-194","post","type-post","status-publish","format-standard","hentry","category-pribehy-rodicu"],"acf":[],"_links":{"self":[{"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/posts\/194","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/comments?post=194"}],"version-history":[{"count":1,"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/posts\/194\/revisions"}],"predecessor-version":[{"id":195,"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/posts\/194\/revisions\/195"}],"wp:attachment":[{"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/media?parent=194"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/categories?post=194"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/tyden.ranapece.cz\/2025\/wp-json\/wp\/v2\/tags?post=194"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}